Kompetenzzentrum Seltene Erkrankungen


Samstag, 22. April 2017
5. Heidelberger Symposium - Seltene Lungenerkrankungen im Focus
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Freitag, 05. Mai 2017 - Sonntag, 07. Mai 2017
15th WFH International Musculoskeletal Congress
Seoul, South Korea
The Congress program will feature presentations, posters, and exhibit displays with a focus on musculoskeletal approaches to hemophilia. Key developments in the field will be addressed, making the event relevant to orthopedists and physical therapists around the world.
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Sonntag, 07. Mai 2017 - Mittwoch, 10. Mai 2017
4th International Clinical Trials Methodology Conference
Liverpool, United Kingdom
This event promises to be a unique opportunity for those working in clinical trials to collaborate at a world leading conference venue to discuss the issues pertinent in trials today.
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Donnerstag, 11. Mai 2017 - Freitag, 12. Mai 2017
CMT-NET Meeting 2017 in Göttingen
Charcot-Marie-Tooth - Neueste Entwicklung in Klinik und Forschung
Max-Planck-Institut für Experimentelle Medizin, großer Hörsaal EG, Hermann-Rein-Str. 3, 37075 Göttingen
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Sonntag, 14. Mai 2017 - Montag, 15. Mai 2017
Orphan Drugs and Rare Diseases Europe 2017
Berlin, Germany
This conference will discuss the controversial German pricing mechanism as well as bring together leading industry professionals to discuss the latest regulatory developments, explore how to reduce costs and learn from the latest innovations in the orphan drug landscape.
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Donnerstag, 11. Mai 2017 - Freitag, 12. Mai 2017
Advances in transgenic animal models and techniques
Nantes, France
The meeting will give the opportunity to update information on techniques and models in transgenesis and genetic engineering.It is intended for Master, PhD and medical students with a background in molecular biology and genetics as an introduction to future work in these rapidly developing areas of research.
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Samstag, 03. Juni 2017 - Sonntag 04. Juni 2017
World Orphan Drugs Congress Asia
Bringing together specialised biotechs/pharmas, government, payers, investors & patient groups in one platform, this event offers a unique opportunity to increase brand visibility amongst the rare disease industry in Asia.
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Montag, 05. Juni 2017
ExPRESS 2017 Expert Patient and Researcher EURORDIS Summer School
Barcelona, Spain
The programme allows patients and researchers to sharpen their advocacy skills and gain an understanding of the regulatory process of orphan medicinal products so that they are able to advocate at a European level. The programme has online and face-to-face components. The face-to-face portion trains 40 expert patients annually as part of an intensive 4.5 day course held in Barcelona, Spain.
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Mittwoch, 07. Juni 2017 - Freitag, 09. Juni 2017
5th Rare Diseases Summer School
Zurich, Switzerland
The summer school will contain lectures by national and international rare disease experts, workshops, and poster presentations by participants. A high faculty to student ratio will allow participants to optimally benefit from the varied expertise of the faculty. There will be ample time for discussions, teamwork, as well as for socializing.
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Donnerstag, 8. Juni 2017 - Samstag, 10. Juni 2017
Transplantation in inherited metabolic disease
Lille, France
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Samstag, 10. Juni 2017 - Dienstag, 13. Juni 2017
8th ICCBH - International Conference on Children's Bone Health
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Donnerstag, 15. Juni 2017 - Freitag, 23. Juni 2017
20th Summer School
Paris, France
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Freitag, 30. Juni 2017
Netzwerktreffen CeSER
Am 30.06.2017 findet das dritte CeSER-Netzwerktreffen in der Zeit von 14.30 – 16.30 Uhr im Seminarraum des Kinderambulanzzentrums, Universtitsätskinderklinik Bochum, Alexandrinenstr. 5, 44791 Bochum statt.
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Samstag, 01. Juli 2017 - Dienstag, 04. Juli 2017
11th European Cytogenetics Conference 2017
Florence, Italy
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Samstag, 15. Juli 2017 - Sonntag, 16. Juli 2017
3rd World Conference on Congenital Disorders of Glycosylation
Leuven; Belgium
The "World Conference on Congenital Disorders of Glycosylation (WCCDG) for Families and Professionals” is a biennial event fruitfully designed in collaboration with leading experts in the field of CDG: families and professionals work together to exchange knowledge, experiences, needs and perspectives.
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Donnerstag, 24. August 2017 - Samstag, 26. August 2017
10th ISNS Asia Pacific Regional Neonatal Screening Meeting
Ulaanbataar, Mongolia
This meeting brings together (para)medical professionals concerned with the neonatal screening for congenital (metabolic) conditions and will discuss the latest development concerning screening methodology, diagnostics and treatment.
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Donnerstag, 31. August 2017 - Freitag, 01. September 2017
International Conference on Chronic Diseases
Brussels, Belgium
International Conference on Chronic Diseases is intended to urge more noteworthy collaboration to offer a forum that will connect worldwide gathering of people for the exchange of thoughts and points of view for better comprehension of beginning, advancement, clinical and interpretation science to convey potential cure for Chronic Diseases.
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Mittwoch, 06. September 2017 - Freitag, 08. September 2017
The 6th World Congress of Clinical Safety
Rome, Italy
The congress covers a wide range of safety topics, such as clinical safety (patient safety, medication safety, medical device safety), infectious disease outbreak, disaster healthcare, clinical crisis governance, environmental health & safety, food safety, and other related safety subjects.
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Mittwoch, 27. September 2017 - Samstag, 30. September 2017
International Ataxia Research Conference IARC
Pisa, Italy
GoFAR, FARA and Ataxia UK in collaboration host what will be the second edition IARC where the latest research on 'Friedreich's ataxia will be presented and discussed. SCA and other progressive ataxias will also be presented and discussed. Plenary sessions will include the progress in the field of gene therapy, animal and cellular models, approaches pharmacologists and their development and clinical research.
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Dienstag, 10. Oktober 2017 - Samstag 14. Oktober 2017
10th European metabolic course
Heidelberg, Germany
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Mittwoch, 08. November 2017 - Freitag 10. November 2017
International Primary Immunodefiencies Congress
Dubai, Vereinigte Arabische Emirate
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Freitag, 10. November 2017
ACHSE Mitgliederversammlung und Fachtagung
Die ACHSE-Mitgliederversammlung 2017 findet am Freitag, 10. November in Bonn statt. Tags darauf dann, können Sie wie gehabt an der Fachtagung teilnehmen.
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Donnerstag, 16. November 2017 - Samstag 18. November 2017
Synaptic metabolism and brain circuitries in IEM: exploring old and new disorders
Barcelona, Spain
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Mittwoch, 7. März 2018 - Samstag 10. März 2018
International Congress on Research of Rare and Orphan Diseases
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Samstag, 11. April 2018 - Montag 13. April 2018
The Translational Science of Rare Diseases III
Evangelische Akademie Tutzing
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